While OkuloVision CPC therapy is in development, we will strive to ease the burden of vision loss treatment by providing vetted, supportive resources.

Foundation Fighting Blindness

On this website, anyone can register to receive newsletters from the Foundation on research progress, clinical trials, lectures and events, as well as other resources. Patients with Inherited Retinal Disease (IRD) can register as part of a clinical trial to create a database (ClinicalTrials.gov Identifier: NCT02435940) from which patients can be alerted to potential relevant clinical trials, and researchers can identify appropriate patients for clinical trials.

Clinical Trials Registry

The clinicaltrials.gov site is a is a place to search for new clinical trials, check trial and enrollment status and inclusion/exclusion criteria, and other important information. The site is easy to search by diagnosis or other key words—and search terms are necessary to focus down on trials of interest since the site is not only for eye-related clinical trials. Registration with clinicaltrials.gov by a trial sponsor does not imply anything about the quality of a clinical trial — It is the starting point for doing the research necessary to understand the quality of the trial. The investigators managing the trial can be contacted through the registry listing, but all information should be vetted with ophthalmology experts who understand a particular patient’s disease process.

Prevent Blindness

Preventblindness.org contains lots of helpful information on resources for patients with low vision.

National Eye Institute

The website of the eye institute of the National Institutes of Health contains excellent summaries of the current knowledge around diseases of the eye, including inherited and acquired retinal diseases.

Choroideremia Research Foundation

CRF is the largest organization in the world focused on the search for a cure for choroideremia (CHM). Its mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; and to inform the public. For more information, visit www.curechm.org.